For nearly all of her life I have been waiting for words. (That’s about one thousand eight hundred and twenty-five days and counting). I can still remember the moment I knew her name. I was 7 months pregnant, and Brandon was preparing to deploy to Iraq. My friend Shannon and I were chatting after dinner [...]
Archive for February, 2009
In Her Heart
Posted in Ordinary Miracles, tagged autism, heart, rhema, spoken word, word on February 26, 2009 | 24 Comments »
A Good Night
Posted in Uncategorized on February 24, 2009 | 14 Comments »
Friendship is unnecessary, like philosophy, like art…. It has no survival value; rather it is one of those things that give value to survival. ~C.S. Lewis From left to right: Hadar, Jess, Kyra, Pixie, Mama Mara, Michelle, Tanya, Jenn, me. Missing from the picture is Petra, Kim, and the Woof! man himself, John Elder Robison, [...]
Bloggy Gratefulness
Posted in Updates, tagged autism, blog, friend, mothers, support on February 19, 2009 | 25 Comments »
Warning: Sappiness Ahead The first time I went to an autism support group meeting, I remember being intrigued by the other women there. They were beautiful, smart, funny, “normal.” Some had children with Asperger’s. Others with classic autism. Others with multiple children spanning the spectrum. Suddenly I was not alone. I was surprised. I did [...]
Inextricable
Posted in Musings, tagged autism, daughter, mother, seizure on February 17, 2009 | 18 Comments »
Recently the school called to say that she was doing something really strange with her hand. She held it rigid against her chest, wouldn’t use it. It seemed like she’d lost some mobility. They wanted to know, ‘Is this a pre-cursor to a seizure?’ But I didn’t know. I drove the 45 minutes to the [...]
Make It Better
Posted in Updates on February 12, 2009 | 12 Comments »
In our house, we do what most parents do when a child complains of an injury. We say, “Aw, come here. Let me kiss it and make it better.” It’s so predictable. Hope is immediately comforted upon receiving her kiss. In fact, she’s come to depend upon a kiss from Mommy or Daddy to heal [...]
What’s Going On In That Head?
Posted in Updates, tagged autism, eeg, epilepsy, landau kleffner on February 10, 2009 | 13 Comments »
Another overnight EEG this week… Some 30 plus electrodes glued to the scalp in an attempt to determine what’s going on in her little head. Her Creator already knows…! “Indeed, the very hairs of your head are all numbered…” Luke 12:7
Refrigerator Magnet
Posted in Uncategorized on February 5, 2009 | 19 Comments »
Can I get an Amen?
Song Without Words
Posted in Uncategorized, tagged autism, lining a hymn, nonverbal, sing, song on February 2, 2009 | 17 Comments »
She “sings”. She scats. She hums. Almost all the time. Mostly babble. Recognizable tunes here and there. She sings when she’s happy and when she’s distressed. She sings during her therapy and has to be shushed. She sings in the middle of the night. “I call to remembrance my song in the night…” Ps. 77: [...]
