Hope’s asthma landed us in the hospital for two and a half days. When we got to the ER on Saturday, her blood oxygen level was dangerously low, and her heart rate was very fast. She was put on steroids and received “intensive breathing treatments” every two hours. Hope was her same Hope-ful self, even [...]
Archive for April, 2009
Perfect Patient
Posted in Uncategorized, tagged asthma, autism, Hope, hospital on April 28, 2009 | 19 Comments »
She Doesn’t Hear Us
Posted in Uncategorized, tagged autism, hear, hearing, respond to name on April 24, 2009 | 18 Comments »
“The amazing thing about Dov is that he didn’t begin to communicate until he was nine years old, and it was only then that we discovered a boy we had not known before. A smart, caring, wonderful boy who, when we asked him what he had been doing all those years, simply spelled out: “listening”.” [...]
Autistic Leading
Posted in Musings, tagged autism, autistic leading on April 22, 2009 | 13 Comments »
When she wants something she comes and takes me by the hand and leads me into the kitchen. Then she thrusts my hand toward the freezer. That’s her way of telling me that she wants a popsicle. Or, if she wants to go outside, she leads me to the door and pushes my hand toward [...]
Communicating Love
Posted in Ordinary Miracles, tagged autism, i love you on April 19, 2009 | 36 Comments »
“I have loved you with an everlasting love; I have drawn you with loving-kindness.” Jer. 31:3 (written April 16, 2009) Rhema and I were doing our usual bedtime routine when I remembered that I had forgotten to put some ointment under her nose (she was very chapped from a lingering cold). I jumped out of [...]
More on Hope
Posted in Uncategorized, tagged allergies, asthma, autism, food allergy, Hope on April 16, 2009 | 15 Comments »
Hope’s latest blood test confirmed that she still has very severe, multiple food allergies. I was really, really disappointed. When your child has allergic reactions to foods with egg, wheat, dairy, soy and nuts – sometimes by simply touching them – it’s not always easy living. This is what food allergies have done to Hope. We’ve also [...]
The Case of the Unclothed Child in a DMR Office
Posted in Uncategorized on April 13, 2009 | 22 Comments »
I don’t have red hair and freckles, but growing up, I believed that Anne of Green Gables and I understood each other. She was always getting into scrapes, and so was I. My sisters alternately called me Calamity Jane and Charlie Brown. If you have visited my blog for any length of time you know [...]
Happy Easter
Posted in Uncategorized on April 8, 2009 | 20 Comments »
Hope, age 2.
Mended
Posted in Ordinary Miracles, tagged autism, miracle, MS, multiple sclerosis on April 5, 2009 | 17 Comments »
mend – “to make (something broken, worn, torn, or otherwise damaged) whole, sound, or usable by repairing.” – dictionary.com When my twin was diagnosed with MS three years ago, she could not walk. Lesions cluttered her brain and spine. The pain was so intense that she could not stand to feel the hospital sheets against [...]
Five
Posted in Uncategorized, tagged autism, birthday, five, rhema on April 2, 2009 | 36 Comments »
We missed the “deadline.” She’s turning five. That magic number in autism world has come. The age where “early intervention” is no longer early, and brain plasticity is… not so “plastic.” The age where the “window” of opportunity supposedly slams shut. Three years ago we got the memo: For a “favorable” outcome, she should be [...]
Autism and MS support
Posted in Uncategorized, tagged autism awareness month, children of destiny, MS, multiple sclerosis on April 1, 2009 | 2 Comments »
1) For Autism Awareness Month, Children of Destiny is hosting TURNING THE TIDE, “a corporate prayer thrust in which thousands from around the world pray over the same issues related to autism for each day of the month of April.” Click here for the prayer calendar and here for more information! 2) April 2 [...]
