… then maybe it would make sense to me. If I could make you understand that I know how frightening it is for you to get an EEG. Strange people handle your head and mark up your scalp. The smell of the glue, the sound of the unseen vacuum tube as each lead is [...]
Archive for June, 2009
If I Could Make You Understand
Posted in Uncategorized, tagged autism, landau kleffner, LKS, seizures on June 26, 2009 | 21 Comments »
Autism Safety Measures
Posted in Uncategorized, tagged autism, bolters, no sense of danger, safety on June 23, 2009 | 12 Comments »
I realized that not all homes are Rhema-proofed when we visited my sister over a year ago. Rhema and her older cousin Lexi were sitting in the living room watching TV, while my sister and I prepared dinner. The girls were being “watched” by my brother-in-law in the living room. Rhema was in a T-shirt and her… [...]
Wonder Child
Posted in Uncategorized on June 22, 2009 | 20 Comments »
We’ve managed to accrue a few of those toy laptops over the years. There’s the Barbie one, the VTech one, and the Disney Princess one. I tried once, a long, long time ago to teach Rhema how to play with the laptop. But I became discouraged quickly, because it turned into a “hand war” with her [...]
A Blessing on the Door
Posted in Uncategorized, tagged autism, blessing, father, father's day on June 19, 2009 | 18 Comments »
Thank you. Thank you for all of the well wishes and prayers after my last post. It meant more to us than you can know. Somebody must have really prayed because Rhema has been able to sleep for the past few nights! We finished the EEG, she went back to school yesterday and we are [...]
I Will Rest You
Posted in Uncategorized, tagged autism, landau kleffner, rest, seizures, sleeping disorder on June 14, 2009 | 33 Comments »
I will lie down and sleep in peace, for you alone, O LORD, make me dwell in safety. Psalms 4:8 Rhema’s brain and sleep have always been in an argument. When she was a baby, I was baffled by the fact that she did not sleep. I thought that babies slept, and mine simply [...]
Where’s Jesus?
Posted in Uncategorized on June 12, 2009 | 11 Comments »
This one is for James. It’s important to us that both Rhema and Hope learn about our faith in God. Hope has a toddler Bible and Brandon enjoys teaching her Bible stories and verses. He has taught her to quote John 3:16, and we are often amazed at the things she retains and understands [...]
Just a Thought
Posted in Uncategorized on June 10, 2009 | 14 Comments »
My Hope Baby no longer wants to be my ‘Hope Baby.’ I’ve always called her Hope Baby, but now she wants to be called ‘Hope Big Girl.’ Because, you know, at 2 ½ years old, she is so not a baby. I don’t want her to grow up. Wah! I told Hope that I wouldn’t [...]
Mommy Mode
Posted in Uncategorized, Musings, tagged motherhood, mommy mode on June 7, 2009 | 15 Comments »
I recently reconnected with a dear friend from college (…my grudging thanks to Facebook). We were so goofy in school. She came into town this weekend and spent a whole day with us. My friend is beautiful, smart, single, extremely accomplished, currently working for a top law firm in Seattle. When I picked her up from the airport, [...]
Bubble Eater
Posted in Uncategorized, tagged autism, bubbles, handwashing on June 4, 2009 | 18 Comments »
Thanks to many hours of practice and consistent work at home and school, Rhema has mastered independent handwashing… Almost.
There’s a velvet leotard hanging in my laundry room
Posted in Ordinary Miracles, tagged autism, God, gymnastics, leotard, nothing is impossible with God, special olympics on June 3, 2009 | 26 Comments »
So here’s my little story. ~Last year I read an article about a Special Olympics gymnastics team, and I contacted the coach. She informed me that the program was only for 8-year olds – (Rhema was 4 at the time). When I hung up with her, I never imagined that I would hear from her [...]
