Been kind of empty on words here lately like my Thanksgiving bowl the leftovers are long gone and all I can say is Thank you This has stayed with me: “And then there was that quote from Kahlil Gibran’s The Prophet … something about suffering being the gouging and digging out of the “bowl” [...]
Archive for November, 2009
Full
Posted in Uncategorized on November 30, 2009 | 12 Comments »
Connections
Posted in Uncategorized, tagged army, autism, brandon, communication, deployment, iraq, military on November 23, 2009 | 20 Comments »
I had forgotten how difficult communication can be when Brandon is deployed. Those first couple weeks after he left… several times a day I would flip open my cell phone to give him a call, forgetting that I could not reach him. We have to wait for a call or e-mail from him, never knowing [...]
Lost, Found
Posted in Uncategorized on November 20, 2009 | 15 Comments »
It is love that asks, that seeks, that knocks, that finds, And that is faithful to what it finds -St. Augustine It’s common to hear some parents of children newly diagnosed with autism to say, “We had a bright-eyed, engaged little boy and then we lost him.” There’s debate and controversy around the subject. [...]
Rhema’s Opinion on EEGs
Posted in Uncategorized on November 18, 2009 | 34 Comments »
Rhema had a 24-hour ambulatory EEG last week instead of a sleep deprived EEG. (That means we all got to sleep – Woohoo!) I took her to the hospital on Thursday to get the leads put on, we came home, she slept, and then we went back to the hospital the next day. It’s usually [...]
Her Language
Posted in Uncategorized, tagged Amanda Baggs, autism, language, nonverbal, song, words on November 16, 2009 | 36 Comments »
From the moment she wakes, she is making sounds. High and low, up and down, soft and loud and soft. She sings and hums, she babbles repetitively; sounds that cannot accurately be represented through typed letters. It is, as one woman put, incessant. During the day, it becomes background music. At bedtime, it can be annoying. [...]
Just a Loose Nut
Posted in Uncategorized on November 12, 2009 | 31 Comments »
The past week has been rather eventful. ~First, Hope comes down with that flu everyone’s been talking about. ~Then a hawk crashes into the window on my screen door. Leaving lots of yucky bird blood and feathers. ~Later I get attacked by a pigeon on steroids in my breezeway. ~Next a radiator starts leaking. ~Then [...]
Sleep Deprived EEG
Posted in Uncategorized, tagged childrens hospital boston, eeg, sleep, sleep deprived eeg, sleep disorder on November 9, 2009 | 34 Comments »
Update: Rhema is sick with the flu. EEG cancelled! Rhema will have a sleep deprived EEG Tuesday morning. That means I have to keep her up all night tonight and then drive her into Boston for her EEG, during which time they expect her to sleep. A couple years ago when Rhema did her first BEAM [...]
So Be It
Posted in Uncategorized, tagged autism, God, landau kleffner, LKS, seizure disorder, seizures on November 6, 2009 | 30 Comments »
As he went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.” John 9:1-3 When [...]
Allergyville
Posted in Uncategorized, tagged allergies, anaphylaxis, eczema, faan, food allergy, Hope on November 4, 2009 | 27 Comments »
Hope has severe food allergies. So I was glad to make it through the Halloween hype and abundance of chocolatey, nutty candy without a trip to the emergency room. We’ve had a string of infractions lately that have added a few more gray hairs. Talk about learning to trust God with my children… Every time I [...]
Smelly Pebbles
Posted in Uncategorized, tagged autism, humor, playground, toilet training on November 1, 2009 | 22 Comments »
For the past two months women from the church have faithfully shown up on my doorstep to offer their help. Every Saturday, one or two women set aside a few hours just to spend time with me and the girls, assisting in any way they can. I am very blessed, yes? Note: If you are ever reluctant [...]
