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Archive for December, 2010

Goin’ Dark

Off to rural Michigan for the holidays… where there is NO INTERNET. Gah. Somehow I will survive. Merry Christmas and Happy New Year! “For to us a child is born, to us a son is given… and his name shall be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace.” Isaiah 9:6

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Fighter

 . A problem with Rhema’s seizure medication leads to a late-night urgent message to the neurologist-on-call. She directs us to take Rhema to the ER. My Rhema is drugged, out of it, can’t talk, can’t stand. I carry her backpack, her meds and all 52 lbs of her into the hospital as if she’s weightless. She [...]

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Spiritual Winds revisited

Since the husband returned home from deployment he’s been very helpful. I am so thankful. He does some things differently than Mom (like nuke the turkey bacon to oblivion); he does some things way better than Mom (like read stories at bedtime). We are all adjusting well, and I know friends have prayed for us. [...]

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It’s the time of year when we special needs parents try to find a way to say thank you to the teachers and therapists who teach and care for our children in the form of a meaningful holiday gift or card. How do you say thank you? How do you convey gratitude to the people who [...]

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A Silent Night

A couple years ago Rhema was hospitalized for her seizure disorder. Doctors decided to give her a bolus – an extremely high dose of diazepam/valium – in an attempt to shock her system out of seizure mode. The medication accomplished its purpose, but initially had a paradoxical effect sending Rhema into a violent fit. She [...]

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Regeneration

O great God of highest heaven Occupy my lowly heart Own it all and reign supreme Conquer every rebel power Let no vice or sin remain That resists Your holy war You have loved and purchased me Make me Yours forevermore I was blinded by my sin Had no ears to hear Your voice Did [...]

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By the Hand

. Occassionally I see them. An older woman holding her almost-adult daughter’s hand, gently leading her, guiding her, walking with her. As a mother of a special needs child, I feel an instant connection to this mother and I imagine that it will be my pleasure to hold my little girl’s hand like that even [...]

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Mama tries to get a job

After seven years of domestic engineering, Mama thinks it might be time to return to the work force part-time. She trades her snot-slimed, over-sized T-shirt and Mom jeans for a blouse and a pair of slacks. She plucks her eyebrows. She fusses with her hair. And finds some half-eaten lipstick. She rides the train and [...]

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“For to us a child is born,    to us a son is given,    and the government will be on his shoulders. And he will be called    Wonderful Counselor, Mighty God,    Everlasting Father, Prince of Peace.” ~Isaiah 9:6 . “Peace I leave with you; my peace I give you. I do not give to you as [...]

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When you have Hope

We’re in the grocery store. “Mommy, are those eggs gluten free?” “Um. Well, yes the eggs are gluten free. But you still can’t have them because they’re eggs.” “Mommy, are those cookies dairy free?” “Um. Well, yes the cookies are dairy free but they have nuts and wheat in them so you can’t have them.” “Mommy, [...]

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