“Have you told them yet?” Brandon looks up at me from across the table and shakes his head. “I’ve started talking with Hope. Just a little bit,” he says. Every night, honestly every night, when Hope prays she says: ‘Thank you God that we’re all together.’ I don’t know what she knows. I don’t know [...]
Archive for April, 2011
Again
Posted in Uncategorized, tagged army, autism, deployment, military on April 28, 2011 | 30 Comments »
Dining out
Posted in Ordinary Miracles on April 25, 2011 | 48 Comments »
One of the reasons we never go to a real bona-fide sit-down restaurant is because of Hope’s many food allergies (nuts, eggs, wheat, dairy, soy). Just too hard, just too risky. The other reason is, well, Rhema. Dining out would require waiting, sitting down, sitting still, not trying to scoop the ice out of someone’s drink, not [...]
He is not dead. So there is Hope.
Posted in Uncategorized on April 24, 2011 | 5 Comments »
How deep the Father’s love for us, How vast beyond all measure That He should give His only Son To make a wretch His treasure How great the pain of searing loss, The Father turns His face away As wounds which mar the chosen One, Bring many sons to glory Behold the Man upon a [...]
Renegade chewable
Posted in Uncategorized on April 21, 2011 | 6 Comments »
Rhema’s been through many medication changes over the last few years. Thankfully, she’s usually great about taking her meds and supplements. But every now and then she tells those pills to take a hike…
Stuck
Posted in Uncategorized on April 15, 2011 | 28 Comments »
Thank you so much for your comments and emails from my last post. Your prayers and encouragement mean so much. It’s a strange thing – to receive that kind of news about your child. It gives us a better understanding of what’s going on with her, but it doesn’t really change anything. Rhema’s still Rhema, [...]
I don’t have a title for this one
Posted in Uncategorized on April 14, 2011 | 40 Comments »
At the hospital, we wait to see Rhema’s neurologist. On this particular day he’s moved his office to the Orthopedic floor. It’s a hard, hard floor. To see little bodies broken, wounded, palsied and withered. The waiting room is bursting at the seams and children are crying. A team of medical workers rush by us, pushing a [...]
Her image
Posted in Ordinary Miracles, tagged autism, mirrors, sense of self on April 10, 2011 | 22 Comments »
“Given the enjoyment that typically developing children… derive from such engagement [with mirrors], the loss of this opportunity in autism might potentially contribute to further impairments in the development of a sense of self.” ~An interesting study on autism and sense of self . I feel a little silly writing about this. Such a small thing. [...]
EEG-ness
Posted in Uncategorized, tagged ambulatory eeg, autism, eeg, seizure disorder on April 7, 2011 | 14 Comments »
“Cause it’s been fear that ties me down to everything But it’s been love, Your love, that cuts the strings… You make me want to be brave.” ~ Brave, Nichole Nordeman . In the past few months there’s been concern that Rhema might be having seizures at school. She suddenly squeezes her eyes tightly shut. [...]
Seven years of Thankful
Posted in Uncategorized on April 4, 2011 | 32 Comments »
Thank you, thank you, oh thank you my Lord for giving her to us. ~scribbled in my journal hours before giving brith to Rhema Ultrasound: Rhema at 29 weeks Zero. My sisters and I, we believe eggplant parmesan to be the secret inducer. I eat a lot if it the Friday night, 2 weeks [...]
Whip my hair
Posted in Uncategorized on April 1, 2011 | 10 Comments »
Light It Up Blue! for World Autism Awareness Day . “Got to love that afro hair do.” ~Corinne Bailey Rae, Put Your Records On i whip my hair back and forth i whip my hair back and forth (just whip it) i whip my hair back and forth i whip my hair back and forth (whip it real [...]
