*Do not read during lunch.
Well, it’s been a crappy start to the new year. =}
There are numerous studies that suggest gastrointestinal issues are more common in children with autism. The reasons for this are not all clear – a compromised immune system could be at play, sensory processing issues might be a factor, etc. – but one thing is clear: my girl’s had poop problems for years.
As a result I’ve become sort of a poop professional. (I certainly deserve an honorary advanced degree in poop clean-up). I love a good poop story, and it’s fitting I’m telling one as my first blog post of the year! I have lots of photos of poop art masterpieces – one which involves a toenail-painted bare foot (… the foot was mine, the poop was hers). And once I was so intrigued by my child’s poop that I wanted a doctor to see it so I saved it in a Ziploc bag and put it in the refrigerator. Too much?
From ages 2 to 4, she suffered with chronic diarrhea. The gluten-free, casein-free diet finally stopped the muddy rivers… and made toilet training possible.
For the past year she’s suffered from chronic constipation. We’ve tried a number of things – daily laxatives, suppositories, commode chants, to no avail.
Last month we ended up in the ER because she’d been unable to go for nearly three weeks. The poor child was walking around doubled over, and oral laxatives only caused her more stomach pain. After a hefty dose of magnesium citrate even failed to do the job, we turned to the enema as a last resort.
But there was no way on God’s green earth my autistic daughter with the strength of three linebackers was going to quietly lie still while I squirted warm liquid into her rectum. Even with my fit, Army-wartime-commander husband holding her down. Not happening.
So we ended up at the hospital. I felt like a failure, bringing her in, saying she needs an enema and I really don’t want her to have to go through this here in the hospital. But we can’t do it. Autism is too big for us tonight.
But the doctor assured me they see this a lot – ASD kids with serious constipation issues. I sighed at that – sometimes it seems as if nothing comes easy for our special children.
They did x-rays, and my poor Rhema had quite the impaction. We waited while they concocted an enema just for her. It was Hope’s birthday, and we told her it was our quarterly Russell Family Field Trip to the ER. She was psyched.
It was late and B took Hope home, so I was left to do the dirty work. Ultimately, it took 4 people to hold her down and administer the enema. Rhema was so frightened and upset; she cried and cried. The hardest part was forcing her to hold it in for 5 minutes after the enema was in. When we released her, instead of running to the bathroom, she leaned over the side of the bed and cried.
As soon as the nurses left the room, Rhema stood up and I rubbed her back. I’m not sure what happened next but all of a sudden Rhema and I, the bed, the floor, the walls, and my backpack on the other side of the room were covered. It was like a volcano exploded and was showering chocolate lava.
I yelled, “Code Brown! Code!!! Brown!!!!!!!”
(Thanks Judith).
But no one came to our rescue. Rhema just cried and let it all out right there, and I was in such awe at the sheer volume, I did what any good mama would do. I took pictures. For the blog, I mean, her scrapbook.
We cleaned up, borrowed some clothes and danced out of there 10 20 pounds lighter.
.
Rhema’s relief was short lived and her intestinal issues continue. Hopefully, we will see a new gastroenterologist soon. In the meantime, we cheer and high-five for words, good listening, completed puzzles, and poop. Any little poop is celebrated.
“And when ye see the south wind blow, ye say, there will be heat; and it cometh to pass.” Luke 12:55


O heck. I have one with the one and one with the other. I feel everybody’s pain over the issue. Fortunately, there are a few complications that I experienced in the US, namely a difference is spelling and pronunciation. There is nothing better than making yourself completely incomprehensible in this country than using a word that nobody understands when you say the ‘sensitive’ word out loud, spelled……….diarrhoea. Let us all hope that we can speed up time and avoid another disaster issue.
This is a wonderful post. I was heartbroken for her having to go through the stress of it all, but really did LOL at the ‘code brown!” bit. Some days, I also feel like my life is just full of crap – literally – though I am very lucky that Erik doesn’t seem to have the GI issues that many ASD kids do. I hope the new gastroenterologist helps, but hope even more that her body will simply right itself. Call me a weirdo, but I would love to see those pics LOL!! Poop does not scare me! Happy new year to you and the family, and I hope it is less poopy for you in 2012
xx
Poor baby! That photo is beyond awesome. Can’t believe the magnesium citrate didn’t work. She must be so uncomfortable.
I dearly hope your new Gastro Guy is Dr. Buie. He’s got to be one of the nicest people currently walking the Earth, and super smart when it comes to all kinds of Code Brown issues!
Dr. Buie is great! He spent an hour talking with us about Rhema at an AS event years ago even though she’s not one of his patients. Unfortunately our insurance won’t cover him b/c he’s ‘not in the network.’
We SO feel your pain. Seriously chuckled at your volcano experience! We’ve never been to that stage, but we are on adult doses of daily Miralax AND a triple dose of magnesium citrate. If any of those are forgotten, it’s bad news for all of us for 2 days! Our boy just doesn’t seem to have the necessary motion regardless of what I feed him (though, like you, it was worse with dairy before). Hope you get some answers! When you do, I’d love to hear them! We’re contacting a pedGI in Kenya now to see if there are other tests we can do. Meanwhile, I’m scrubbing the floors, carpets, floors and I’m trying to get my kids to stop discussing their bowel habits at the table… for the sake of future guests. Code Brown!! =)
This is so awesome. I am so sorry for your troubles. But this is just too hysterical. I love your humor!
I am so going to be thinking “code brown! code brown!” next time I have to change a diaper.
Sorry about the constipation issues- our son had that for his first two years, sometimes not going for over two weeks. Now he’s crossed over to the dirrehea side…. not fun, but actually easier than an unhappy constipated child!
Good luck at the doctor! Glad you have a sense of humor about it all.
Oh how hilariously gross. You deserve another medal my dear,
for finding that appropo Scripture to tie it all together too!
Is it terrible that I want to see the photo you took of the explosion?
>_>
heehee. It just sounds really special.
I am with lisbet….is it terrible that I want to see the photo of the explosion. I think they should have handed you that honary degree in poop clean up there at the hospital!!!!
I am very sorry for all of the brown mess. I am glad that Rhema got some relief. I pray that you are able to fine her some peace with her stomach issues.
This too shall pass…..okay I just had to throw that one in……..
I remember when my daughter was an infant and had been constipated. When she finally went, I called my gram, who was my best friend, and she asked me if I ever thought that would be gold to me!
Hoping and praying that the new doc can give some incite for you. Seeing our children/grandchildren suffer is the worst.
Oh, how we know the constipation nightmare. I’m so sorry Rhema goes through this too. It must be so much worse when she doesn’t have the words to express how badly she feels.
You are such a good mommy. My heart goes out to you all (on Hope’s birthday no less, precious peanut Hope).
Holding you all in love.
I agree with the earlier post suggesting a medal. Great story. Glad all survived.best to your family for the coming year.
girl.
I’ll never read Luke 12:55 the same way again.
Wow, I am glad she got some relief, what an ordeal! My oldest went through the poop art stage (especially fun when our house was for sale) but thankfully he keeps it all in the bathroom these days even if it is a little messy. My youngest has had constipation/diarrhea/infection issues and we’ve had our fair share of specimens in the fridge since he would never poop at the doctor’s office when they wanted a sample. I hope I don’t jinx myself by saying how much they have improved with taking probiotics (30 billion cultures daily). I pray that the new gastroenterologist can help Rhema!
Poor little boo.
We’ve been there but not quite as, um, explosive. But, seriously? NO ONE KNEW “Code Brown”??? *shaking my head* We use that here…a lot.
I feel so bad for her. I cannot imagine how awful her tummy must feel when she cannot go for that long. Wow!
People often give funny looks when you say what you have to go to the ER for, but asd parents always understand… I so enjoy your sense of humor… the Code Brown is awesome and gave me a good laugh (always needed)… thank you for sharing and hopefully this too shall pass…
My heart is still breaking for Rhema. Jeneil… you my friend are made of very strong stuff. So far our code browns have all involved poop art and I am rarely able to find the humor. I’m thinking the nurses knew what a code brown was and were drawing sticks to see who would have to deal with it
[...] is a snippet of conversation between me and the ER doctor last month. (Which boggles my mind because I remember Rhema sitting on the bed playing with her iTouch, but [...]