I think it’s safe to say that we have made it through some difficult days. We are in the midst of medication changes for Rhema. To date, she has been fully weaned from an antiepileptic med (Depakote), and is in a 2-week phase of not receiving any seizure meds at all. Next week she starts on a new medication (Keppra).
The effects of the withdrawal on her little body have been significant. Mood swings, tantrums, noncompliance, screaming, toileting regression – yeah, poop everywhere -, night screams, increased stimming. She was nearly manic – too much energy, unable to sleep, much too much going on inside and out.
It was a brief period of just holding on for dear life and trusting God that she’d be there when it was over.
My family gathered,
and we prayed.
After a span of unbearably hot days,
the rain came.
In the midst of the storm, Rhema gleefully ran outside for a taste and a baptism.
And I knew she was still with us. Of course.
She is the one who gives well just when I think she has nothing left.
Like the rain lily . . . thought not to last . . . but when the rain comes she sprouts new flowers in a succession of blooms.
An amazing little girl whose blithe spirit refuses to be parched.
Let the rain kiss you. Let the rain beat upon your head with silver liquid drops. Let the rain sing you a lullaby. ~Langston Hughes